Bardet-Biedl Syndrome UK (BBSUK)
Support charity for people in the UK with Bardet-Biedl Syndrome, offering advice and information for parents and sufferers, help with benefits and newsletters.
They also hold an annual family conference and a family and professionals conference which enables them to be the point of contact between families and professionals.
The number above is for the new families contact, for other contacts see the website.
Services offered
- Information, advice and benefits
- Support and wellbeing
Contact details
- Address:
- 10 High Cross Road, Rogerstone, Newport, Gwent, NP10 9AD
- Phone:
- 01604 492916
- Email:
- [email protected]
- Web:
- https://bbsuk.org.uk/
This organisation was verified on 08 May 2024
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