Contact a Family (CaF)

A national charity for any parent or professional involved with or caring for a child with special needs. CaF brings families together, offering advice and guidance to parents who wish to start a support group either in their neighbourhood or nationally for more rare syndromes and conditions.

They have a national freephone helpline 0808 808 3555 offering advice and information to parents and carers of children with any kind of disability or special need. Including information about conditions and disorders, as well as generic issues such as education, help from social services and benefits.