Batten Disease Family Association (BDFA)
The BDFA are a supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and promoting awareness of the disease and research into potential therapies.
The BDFA operates a free helpline for families living with Batten Disease and the professionals who support them.
Services offered
- Support and wellbeing
Contact details
- Address:
- The Old Library, 4 Boundary Road, Farnborough, Hants, GU14 6SF
- Phone:
- 0800 046 9832
- Email:
- [email protected]
- Web:
- http://www.bdfa-uk.org.uk
- Twitter:
- @BattenDiseaseUK
- Facebook:
- @Batten-Disease-Family-Association
This organisation was verified on 17 November 2022
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