Alstrom Syndrome UK (ASUK)
Alstrom Syndrome is a very rare genetic condition which leads to progressive blindness and deafness and can also lead to heart and kidney failure, diabetes, liver dysfunction and associated problems.
Alstrom Syndrome UK (ASUK) provides information, support and advice for individuals affected the condition, their families and professionals. ASUK also promotes research and awareness of this very rare condition.
Services offered
- Support and wellbeing
Contact details
- Address:
- Alström Syndrome UK, 4 St Kitts Close, Torquay, Devon, TQ2 7GD
- Phone:
- 01803 368871 or 07970 071675
- Email:
- [email protected]
- Web:
- https://www.alstrom.org.uk
- Twitter:
- @AS_UK
- Facebook:
- @AlstromsyndromeUK
This organisation was verified on 13 February 2025
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