Alstrom Syndrome UK (ASUK)
Alstrom Syndrome is a very rare genetic condition which leads to progressive blindness and deafness and can also lead to heart and kidney failure, diabetes, liver dysfunction and associated problems.
Alstrom Syndrome UK (ASUK) provides information, support and advice for individuals affected the condition, their families and professionals. ASUK also promotes research and awareness of this very rare condition.
Services offered
- Support and wellbeing
Contact details
- Address:
- 8 Church Grove, Barnstaple, Devon, EX32 9DJ
- Phone:
- 07980 122404
- Email:
- [email protected]
- Web:
- http://www.alstrom.org.uk
- Twitter:
- @AS_UK
- Facebook:
- @AlstromsyndromeUK
This organisation was verified on 27 January 2023
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